Rare Diseases India Foundation (RDIF)

Rare Diseases India Foundation (RDIF) is a Non-Profit patient advocacy organization dedicated to individuals with rare diseases. Registered in 2019, RDIF was formed to bridge the gap in awareness, education, diagnosis, and treatment of rare diseases in India.

Purpose of the Organization

• Low awareness in the Indian medical community leads to late diagnosis and delayed management.

• Supportive therapies like enzyme replacement and bone marrow transplants exist but lack reliable information access.

• There are no government schemes or insurance policies supporting rare disease patients.

• Limited number of specialists and treatment centers across India.

• Few organized patient groups; most advocacy comes from families of patients.

Our Vision

To enable timely diagnosis, proper treatment, and management of rare diseases for all patients and ensure required support for affected individuals and their families.

Our Mission

• Increase awareness and education on rare diseases, early detection, newborn screening, and genetic counseling.

• Advocate for strong policy support, funding, and national intervention.

• Improve diagnostic and treatment standards for rare diseases in India.

• Collaborate with key stakeholders to strengthen the rare disease ecosystem.

Outreach

RDIF operates pan-India with a focus on state-level advocacy and awareness to promote ownership and action across Indian states.

Contact Information

• Website: www.rdif.org.in

• Email: contactus@rdif.org.in

• Phone: +91-9708097959